Skin and mouth symptoms of NF2 in children under 15
Part of Brain & nervous system, Cancer, Ear, nose & throat, Genetic & congenital clinical trials.
This study looks at skin and mouth problems that children with NF2 may have. It helps doctors learn more about NF2 symptoms in kids, which may lead to better care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- Your child must be under 15 years old.
- Your child must have a confirmed diagnosis of neurofibromatosis type 2 (NF2).
- You and your child must agree to join the study.
- You (or your child's guardian) need to be able to understand and sign the consent form.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study follows babies and toddlers with medium to large birthmarks to understand how they change over time and plan the best care. It will help doctors give better advice to families.
This study looks at how common neurocutaneous syndromes (conditions that affect both the skin and the nervous system) are in children and what their typical features are. It will help doctors better understand these conditions and improve care.
This study talks with people who have NF1 (and caregivers of children with NF1) about how visible tumors affect them. The goal is to create questionnaires that measure these concerns, which could lead to better support and treatments.
This trial tests a new medicine called PRG-N-01 for people with neurofibromatosis type 2 (NF2), a condition that causes tumors on nerves. The study aims to find the best dose and see if the medicine can shrink tumors or improve symptoms like hearing loss or pain, especially for those who cannot have surgery.
This trial tests an oral drug called FCN-159 for people with NF2-related nerve sheath tumors that cannot be fully removed by surgery or have come back after surgery. It aims to see if the drug can shrink or slow the growth of these tumors.
This study follows people with neurofibromatosis type 2 (NF2) over time to learn how the condition changes, using repeat MRI scans. The information may help researchers understand disease patterns and improve future treatments.
Hear when a new Neurofibromatosis 2 trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.