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NCT03920774Possibly a fitRecruiting

Study of Familial Dysautonomia in People With IKBKAP Changes

Familial Dysautonomia (Riley-Day Syndrome)Hereditary Sensory and Autonomic NeuropathiesHereditary Sensory and Autonomic Neuropathy 3

Part of Brain & nervous system, Genetic & congenital clinical trials.

This study looks at how familial dysautonomia (FD) progresses over time in people who have a confirmed IKBKAP genetic change. It may help doctors better understand the condition and plan future treatments.

Summary written for real people, not researchers, by Clin2.

Phase
N/A
Enrollment
400 people
Ages
4 years and older
Study type
Observational

Who can take part

  • You have a diagnosis of familial dysautonomia (FD)
  • Your genetic test shows an IKBKAP mutation (confirmed by molecular testing)
  • You can give informed consent (or, if you are a minor, you can provide assent)
  • You agree to follow the study steps/protocol

View the official record on ClinicalTrials.gov

Quick eligibility check

Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.

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