Heart rhythm genetic registry and blood sample bio bank
Part of Genetic & congenital, Heart & circulation clinical trials.
This study is building a Canadian database and tissue/blood bank for people and families with inherited heart rhythm conditions (and some inherited heart muscle diseases). It collects consented health and genetic information to help researchers better understand who is at risk and how these conditions work.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You (or your legal representative) must understand the study and willingly sign consent.
- You have a known inherited heart rhythm condition or a close family member with one (for example Long QT, Short QT, CPVT, Brugada, ARVC, or certain familial conduction disorders).
- You may qualify as a person who is a carrier of a gene variant linked to an inherited heart rhythm or cardiomyopathy risk.
- You may qualify through a family blood relative: a first-degree relative (parent, child, sibling) with a known diagnosis, or a second-degree relative when screening the person in between isn’t possible.
- If you are being referred for a heart muscle condition, it needs to be a Mendelian (inherited) type like hypertrophic cardiomyopathy, inherited dilated cardiomyopathy, or left ventricular non-compaction.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study builds a registry and collection of samples to better understand families affected by sudden heart death and related heart rhythm problems that are not clearly caused by a heart attack. It may help researchers identify patterns and improve future care, and it offers a way for patients and families to contribute to research.
This study uses your blood or genetic information to make “iPS cells,” lab-grown cells that can help researchers study inherited heart rhythm problems like LQTS, Brugada syndrome, CPVT, or early repolarization syndrome. It may help improve understanding of why these rhythms happen and guide future treatments.
This registry collects information from people with a specific heart condition called arrhythmogenic cardiomyopathy who have an ICD (a device that helps control heart rhythm). The goal is to learn more about heart rhythm problems and how the ICD responds.
This study is a heart rhythm registry for people with inherited conditions that can cause abnormal heart beats. By collecting health and testing information, researchers hope to better understand these conditions and improve care.
This study builds a bank of stored heart rhythm-related samples so researchers can study different heart rhythm problems. It may help you or your family contribute to future testing and better care for arrhythmias.
This study builds a biobank (a secure collection of medical information and body samples) for people with certain heart rhythm problems. You may be able to contribute to research that helps improve understanding and treatment of these conditions.
Hear when a new Sudden Cardiac Arrest trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.