Heart rhythm genetic registry and blood sample bio bank
Part of Genetic & congenital, Heart & circulation clinical trials.
This study is building a Canadian database and tissue/blood bank for people and families with inherited heart rhythm conditions (and some inherited heart muscle diseases). It collects consented health and genetic information to help researchers better understand who is at risk and how these conditions work.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You (or your legal representative) must understand the study and willingly sign consent.
- You have a known inherited heart rhythm condition or a close family member with one (for example Long QT, Short QT, CPVT, Brugada, ARVC, or certain familial conduction disorders).
- You may qualify as a person who is a carrier of a gene variant linked to an inherited heart rhythm or cardiomyopathy risk.
- You may qualify through a family blood relative: a first-degree relative (parent, child, sibling) with a known diagnosis, or a second-degree relative when screening the person in between isn’t possible.
- If you are being referred for a heart muscle condition, it needs to be a Mendelian (inherited) type like hypertrophic cardiomyopathy, inherited dilated cardiomyopathy, or left ventricular non-compaction.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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