Registry for idiopathic retroperitoneal fibrosis in China
Part of Kidney & urinary clinical trials.
This study is a registry that collects medical information (and sometimes tissue results) from people with retroperitoneal fibrosis that is not caused by another known condition. It may help doctors better understand the disease and improve future care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with retroperitoneal fibrosis (RPF) based on standard criteria
- Your scans should show a mass in the back of the belly near major blood vessels and may affect nearby tubes/organs
- If you have “definite” RPF, it must show a specific tissue pattern under a microscope
- You have not had your condition clearly progress after standard steroid treatment (glucocorticoids)
- You must be checked for and not have other causes like drug-related, infection-related, cancer-related, Erdheim-Chester disease, or IgG4-related disease
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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