Clin2
NCT04708431Possibly a fitRecruiting

Study of health and wellbeing in people with androgen insensitivity

Androgen Insensitivity SyndromeMetabolic Parameters in AIS, CAIS, PAIS and MAISTumor Formation in AIS, CAIS, PAIS and MAISSexual Function AIS, CAIS, PAIS and MAIS

Part of Brain & nervous system, Genetic & congenital, Hormones & metabolism, Kidney & urinary, Women’s health & pregnancy clinical trials.

This study looks at the long-term health and wellbeing of people with androgen insensitivity, a genetic condition that affects how the body responds to androgens (male-type hormones). It may help your care team understand what to watch for over time and improve future guidance for patients and families.

Summary written for real people, not researchers, by Clin2.

Phase
N/A
Enrollment
650 people
Ages
8 years to 99 years
Study type
Observational

Who can take part

  • You are between 8 and 99 years old (or you’re an adult relative of someone with AIS)
  • You have known androgen insensitivity (complete androgen insensitivity is one type), confirmed by genetic testing or by a clinical diagnosis with specific body and hormone findings
  • Your sex/gender is either male or female
  • You are willing to follow the study steps and be available for the full study period
  • You (or your parent/guardian) can understand the study and sign the consent form

View the official record on ClinicalTrials.gov

Quick eligibility check

Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.

Similar studies

Other trials that look related to this one.

NCT00250159Recruiting
Natural history study for hormone-related excess androgen

This study follows people who may have too much “androgen” (a hormone) to learn what causes it and how it changes over time. You may be followed even if the exact cause is not yet known, and your results may help doctors better understand these conditions.

Washington D.C., District of Columbia
NCT03510442Recruiting
Study of joint illness patterns and genes in juvenile and adult diseases

This study follows people with systemic juvenile idiopathic arthritis (sJIA), adult-onset Still’s disease (AOSD), and similar conditions to learn how the illness works over time. It also collects blood and family information to study genetics and explain what causes flare-ups, which may help future care.

Bethesda, Maryland
NCT02830308Recruiting
Adult study evaluating endocrine and metabolic health

This trial enrolls adults with known or suspected hormone (endocrine) or metabolism-related conditions for clinical evaluation. The goal is to help doctors assess and better understand what’s causing these health problems.

Bethesda, Maryland
NCT02257892Recruiting
Study of rare immune system genetic disorders

This study looks for genetic causes of immune problems, such as unusually frequent infections, abnormal allergies, or autoimmune or inflammation conditions. It may help by improving how doctors understand these disorders and by matching families with possible genetic diagnoses.

Bethesda, Maryland
NCT04717349Recruiting
Study collects health information for kids’ and teens’ gynecology concerns

This is a research study that gathers information about pediatric and adolescent gynecology conditions. It may help researchers better understand these issues by learning about symptoms, care, and outcomes—without requiring a specific treatment.

Bethesda, Maryland
NCT00001351Enrolling by invitation
Study of inflammatory disorders and immune system dysfunction

This is a long-term study that evaluates and follows patients with inflammatory conditions related to infections or immune system problems. Researchers at the National Institutes of Health want to understand these conditions better and may ask you to participate in related studies.

Bethesda, Maryland

Hear when a new Androgen Insensitivity Syndrome trial opens

We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.