Registry study for people with HoFH
Part of Genetic & congenital, Hormones & metabolism clinical trials.
This study is a registry (a list that collects health information) for people with homozygous familial hypercholesterolemia, a genetic cholesterol condition. It helps researchers understand this condition better and connect patients with future research.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You must have a confirmed diagnosis of homozygous familial hypercholesterolemia (HoFH).
- Your HoFH diagnosis can be based on genetics or strong clinical evidence from a clinician.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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This trial is a global registry that collects health and genetic information from people with familial hypercholesterolemia (FH) and sometimes from their relatives. The goal is to better understand FH and how it presents, which can help improve care for families affected by high cholesterol.
This registry study collects information from people with familial hypercholesterolemia (a genetic condition causing very high cholesterol) to better understand the disease and improve care. By participating, you help researchers learn more about this condition.
This registry collects information from people with inherited high cholesterol to better understand the condition and care needs. You may be invited to share blood and medical test results, especially your cholesterol and related health history.
This is a study that follows people with a genetic form of very high cholesterol (familial hypercholesterolemia) and their close relatives. It aims to better understand this condition in real families and how it affects health over time.
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