Study board for adults with NF1 and glioma
Part of Brain & nervous system, Cancer, Genetic & congenital clinical trials.
This study collects and reviews past and future health records for adults who have both neurofibromatosis type 1 (NF1) and a brain tumor called glioma. The goal is to better understand these conditions and how they progress, which can help guide future research and care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You must be 18 or older when you sign up
- You must have NF1, confirmed in your medical record or supported by documents you provide
- You must have a glioma confirmed by imaging (scan) or by pathology (tissue test)
- You must agree to let the study collect your past and future NF1-related health records
- You must be willing to sign the informed consent form
- You must be able to read and communicate in English or Spanish
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study records health details about adults who may have a low-grade glioma (a slower-growing brain tumor) based on scan results. Researchers use these data to better understand disease patterns and outcomes, and help connect individual patients to future research.
This study looks at how brain tumors look on MRI and what biopsy tissue shows, using samples taken during planned surgery. It may help improve understanding of tumor biology and future treatment planning.
This is an observational study that collects and compares information from patients with primary brain tumors and their treatment results. It uses stored tumor tissue and brain scans to better understand outcomes using updated tumor classification methods.
This trial is a patient registry portal for people diagnosed with neurofibromatosis types NF1, NF2, or schwannomatosis. By joining, you help researchers collect real-world information that may guide future studies and care.
This study is for adults with glioblastoma, a type of brain cancer. Researchers want to gather information about patients with this condition to better understand it and possibly improve future care. By joining, you help doctors learn more about glioblastoma.
This study talks with people who have NF1 (and caregivers of children with NF1) about how visible tumors affect them. The goal is to create questionnaires that measure these concerns, which could lead to better support and treatments.
Hear when a new Glioma trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.