Registry for pulmonary hypertension in connective tissue disease
Part of Lungs & breathing, Skin clinical trials.
This trial is a registry that collects health information from people with certain types of pulmonary hypertension linked to connective tissue diseases. It helps doctors understand patterns of disease and outcomes, which can guide future care and studies.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have a connective tissue disease (for example, lupus, scleroderma) diagnosed by standard medical criteria
- You have pulmonary arterial hypertension (PAH) linked to connective tissue disease, or a related type called chronic thromboembolic disease
- If you have chronic thromboembolic disease, you must have had at least 3 months of blood thinner (anticoagulation) therapy
- A heart procedure (right heart catheterization) must confirm your lung blood pressure is in the right range (pre-capillary pulmonary hypertension)
- Your pulmonary hypertension must NOT be due to other types (called Groups II, III, or V)
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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