Pulmonary hypertension registry for patient experiences
Part of Heart & circulation, Lungs & breathing clinical trials.
This trial is a registry that collects health information from people with pulmonary hypertension to better understand the disease and improve care. You may be asked to share details about your diagnosis and visits, especially soon after you start seeing a specialized PH care center.
Summary written for real people, not researchers, by Clin2.
Who can take part
- Be willing to sign a written consent form
- Have pulmonary hypertension, such as PAH, CTEPH, or pediatric PH from developmental lung disease
- Start enrolling within 6 months of your first outpatient visit at a PH care center
- Not have pulmonary hypertension from Group 2 causes
- Not have pulmonary hypertension from Group 5 causes (and Group 3 only if it’s from developmental lung disease)
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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