Track symptoms and life effects using a phone survey
Part of Brain & nervous system, Genetic & congenital, Hormones & metabolism clinical trials.
This study uses patient-reported questionnaires and health/economics/psychosocial questions for people with Friedreich ataxia. It aims to better understand how the condition affects daily life and what outcomes matter most, which can help future care and research.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have Friedreich ataxia confirmed by genetic test results
- Your ataxia severity score is 30 points or less
- You are at least 13 years old (older than 12)
- You have a smartphone or tablet and can use it
- You can give consent yourself
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This trial tests if a special platform that measures balance can help people with Friedreich's ataxia stand more steadily. If you have Friedreich's ataxia, can walk at least 10 metres and stand without support, you may be eligible.
This study follows people with Friedreich's ataxia (FA) over time to learn more about the disease. It helps researchers understand how FA affects people of all ages and may lead to better treatments.
This trial tests an investigational drug called DT-216P2 in people with Friedreich's ataxia. It aims to find the right dose and see how safe and tolerable it is.
This study tests a new medicine called DT-216P2 in healthy people to find a safe dose. It is a first step in developing a treatment for Friedreich ataxia, a genetic condition that affects movement and balance.
This study uses fun motion-sensing games (like active video games) to measure movement and coordination in people with Friedreich ataxia. It aims to see if these digital tools can track the disease at home, which might make future monitoring easier.
This study tests an investigational drug given as a daily injection to see if it can improve walking and balance in people with Friedreich's ataxia.
Hear when a new Friedreich Ataxia trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.