Track symptoms and life effects using a phone survey
Part of Brain & nervous system, Genetic & congenital, Hormones & metabolism clinical trials.
This study uses patient-reported questionnaires and health/economics/psychosocial questions for people with Friedreich ataxia. It aims to better understand how the condition affects daily life and what outcomes matter most, which can help future care and research.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have Friedreich ataxia confirmed by genetic test results
- Your ataxia severity score is 30 points or less
- You are at least 13 years old (older than 12)
- You have a smartphone or tablet and can use it
- You can give consent yourself
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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