Breathing and attention in children with Ondine syndrome
Part of Brain & nervous system, Lungs & breathing clinical trials.
This study looks at how breathing affects attention in children with Ondine syndrome, also known as Congenital Central Hypoventilation Syndrome (CCHS). It aims to understand if children with this condition have changes in attention and how those relate to their breathing patterns, helping doctors plan better care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- Children with Ondine syndrome (CCHS) are invited to take part.
- Children must be between 6 and 16 years old.
- They should have an IQ above 70.
- They must be able to speak French.
- Both parents must give written permission, and the child must agree to join.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This trial is looking at blood and urine samples from adults with Congenital Central Hypoventilation Syndrome (CCHS) who use a breathing machine at night. The goal is to find biological markers (biomarkers) that could help better understand the condition and guide future treatments.
This study looks at a small part of the brain called the locus coeruleus in people with Ondine syndrome (also called congenital central hypoventilation syndrome). It aims to understand how this brain area works in people who need nighttime breathing support.
This study looks closely at why children feel short of breath (“dyspnea”) and how breathing symptoms change over time. Your child may help doctors improve understanding and care for breathing problems like asthma or other lung conditions.
This study looks at thinking and memory in people with congenital central hypoventilation syndrome (CCHS) to better understand how the condition affects the brain. It may help researchers measure changes over time and guide future care.
This trial looks at how well non-invasive breathing machines help children with Down syndrome who have obstructive sleep apnea. It tracks their health and sleep over time to see if the treatment works and improves daily life.
This study checks whether special nose tests help doctors choose the best treatments for children with long-term breathing and airway symptoms. It may help your child get more targeted care based on the test results.
Hear when a new Ondine Syndrome trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.