Clin2
NCT06449001Possibly a fitRecruiting

Danicopan plus standard therapy for pediatric PNH

Paroxysmal Nocturnal HemoglobinuriaPNHExtravascular Hemolysis

Part of Blood & lymphatic clinical trials.

This trial tests adding danicopan to a standard treatment (ravulizumab or eculizumab) for children with PNH who still have anemia from extravascular hemolysis. The goal is to see if the combination helps improve red blood cell counts.

Summary written for real people, not researchers, by Clin2.

Phase
Phase 3
Enrollment
6 people
Ages
12 years to 17 years
Study type
Interventional

Who can take part

  • You must be diagnosed with PNH (paroxysmal nocturnal hemoglobinuria).
  • You must have anemia (low red blood cells) and a high reticulocyte count, meaning your body is making extra red blood cells to try to keep up.
  • You must already be taking ravulizumab or eculizumab for at least 12 weeks, with no planned changes in dose.
  • You must be up to date on certain vaccines: meningitis, Hib, and pneumococcus.
  • You cannot have a very low platelet count, a very low white blood cell count, or serious liver problems.

View the official record on ClinicalTrials.gov

Quick eligibility check

Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.

Similar studies

Other trials that look related to this one.

NCT07457151Recruiting
Danicopan study for PNH in Korea

This trial is studying danicopan as an add-on therapy for people with paroxysmal nocturnal hemoglobinuria (PNH) who are already taking a C5 inhibitor like eculizumab or ravulizumab. It aims to see how well danicopan works when used together with these standard treatments.

Busan
NCT07154745Recruiting· Phase 3
New combination therapy for PNH when current treatment isn't working

This trial tests a new combination of two drugs (pozelimab and cemdisiran) for adults with PNH whose current treatment (eculizumab, ravulizumab, or crovalimab) isn't controlling their symptoms well. It aims to see if the combination reduces red blood cell breakdown and improves blood counts.

Ribeirão Preto, São Paulo
NCT06932471Recruiting· Phase 3
Study of a new drug for PNH patients with anemia despite current treatment

This trial tests a new pill (MY008211A) for people with paroxysmal nocturnal hemoglobinuria (PNH) who still have low red blood cell counts (anemia) even after taking anti-C5 antibody therapy. The goal is to see if this new drug can raise hemoglobin levels and improve energy.

Beijing, Beijing Municipality
NCT06931691Recruiting
Study of Iptacopan for adults with PNH in China

This study looks at how well iptacopan works for people with PNH (a condition where red blood cells break down too quickly). It is for adults who have never used certain treatments or who have been on other similar medicines.

Hefei, Anhui
NCT07470762Recruiting· Phase 1/Phase 2
Study of HS-10542 for paroxysmal nocturnal hemoglobinuria (PNH)

This trial tests a new drug, HS-10542, for people with PNH who are already on a C5 inhibitor like eculizumab or covalizumab but still have low hemoglobin or need transfusions. It aims to see if this additional treatment can improve blood counts and reduce transfusion needs.

Hangzhou, Zhejiang
NCT05744921Recruiting· Phase 3
Pozelizumab plus cemdisiran for adult PNH over the long term

This Phase 3 study tests whether long-term treatment with pozeli(z)umab plus cemdisiran is safe and works well in adults with paroxysmal nocturnal hemoglobinuria (PNH). It is mainly for people whose PNH does not respond to certain standard medicines or who have genetic changes that make them refractory.

Toronto, Ontario

Hear when a new Paroxysmal Nocturnal Hemoglobinuria trial opens

We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.