Long-term follow-up for hemoglobin disorder treatments
Part of Blood & lymphatic, Genetic & congenital clinical trials.
This study tracks people with sickle cell disease or thalassemia who have had a bone marrow transplant or gene therapy in the past 15 years. It aims to monitor their health over time to understand long-term effects.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have a hemoglobin disorder like sickle cell disease or thalassemia
- You received a donor stem cell transplant or gene therapy within the last 15 years, or are scheduled to receive one
- You are willing to provide written consent (or have a guardian who can do so)
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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