Database for people with intellectual disabilities and epilepsy
Part of Brain & nervous system, Mental health clinical trials.
This trial creates a database of health information from people with intellectual disabilities and epilepsy. It aims to help doctors and researchers learn more about these conditions and improve care. The database includes information from medical records, and some people may also be asked to join a research register for future studies.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have a diagnosis of intellectual disability (learning disability) and epilepsy (seizure disorder).
- You are 18 years or older.
- You are currently being cared for by a specialist intellectual disability or epilepsy service at one of three participating NHS trusts.
- You are not on the national data opt-out list that prevents your data from being used in research.
- For the research register part: you are between 18 and 30 years old and can either give consent yourself or have someone who knows you well (a personal consultee) to speak for you.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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