DMD Voice: Interviews with patients and caregivers
Part of Bones, joints & muscles, Brain & nervous system, Genetic & congenital clinical trials.
This study invites people with Duchenne muscular dystrophy (DMD) and their caregivers to share their experiences through interviews. It focuses on those who have been taking the medication Givinostat for at least two years, or caregivers of patients with limited arm movement.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are a Duchenne muscular dystrophy (DMD) patient age 10 or older, or a caregiver of someone with DMD.
- If you are a patient, you must have been taking Givinostat for at least 2 years and still be taking it now.
- If you are a caregiver, you must be a parent or legal guardian of a DMD patient who has been on Givinostat for 2+ years, or care for a DMD patient who cannot lift their hands above their head.
- You must be willing to take part in a video or audio recorded interview.
- Caregivers in the second group must live in the U.S. or Canada, speak English, and have a stable internet connection.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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