Duchenne and Becker Muscular Dystrophy Health Records Study
Part of Bones, joints & muscles, Brain & nervous system, Genetic & congenital clinical trials.
This study collects electronic health records (medical information already in your doctor's computer system) from people with Duchenne or Becker muscular dystrophy, or female carriers of these conditions. Researchers will use this data to better understand the diseases and improve care over time.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You or your family member has been diagnosed with Duchenne muscular dystrophy, Becker muscular dystrophy, or you are a female carrier of one of these conditions
- Your doctor's clinic or hospital uses a specific electronic health record system called PPMD's Interchange
- You agree to let your medical records be shared with the research registry
- If you have severe difficulty with movement or strength, a caregiver can help you give consent
- If you have difficulty communicating or with decision-making, a legally authorized representative can help you consent
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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