Long-term effects of BPD on family quality of life
Part of Genetic & congenital, Lungs & breathing, Women’s health & pregnancy clinical trials.
This study looks at how bronchopulmonary dysplasia (BPD), a lung condition in premature babies, affects the long-term health and quality of life of children and their families. Parents or caregivers of children born early with or without BPD can join to compare experiences.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are the parent or primary caregiver of a child under 18 years old.
- Your child was born before 37 weeks of pregnancy (preterm).
- Your child has been home from the hospital after birth.
- Your child was either diagnosed with BPD as a newborn or was not (control group).
- Your child was born or lives in France, Germany, Italy, the Netherlands, Spain, the United Kingdom, or the United States.
- You can read and answer a questionnaire in English, French, German, Italian, Dutch, or Spanish.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study looks at whether viruses in the gut and lungs of very premature babies affect their risk of developing bronchopulmonary dysplasia (a chronic lung condition). It aims to find ways to predict or prevent this problem.
This study looks at whether a careful CPAP breathing support plan helps very premature babies breathe better. It may be an option for babies who are stable on low oxygen settings and have few breathing pauses.
This study tests a way to monitor and adjust oxygen therapy from home for premature babies with a long-term lung condition called bronchopulmonary dysplasia. The goal is to see if remote monitoring can improve oxygen management and reduce complications.
This study asks parents and caregivers of newborns who needed special or intensive care in the first week of life about their hospital experiences. It aims to understand how families cope and what support they need.
This study looks at babies born very early who have severe lung disease (grade 3 BPD) and still need a breathing machine. Researchers will use tests to understand their lung problems better, which may help guide their care.
This study follows children born with a congenital lung malformation (a lung problem present at birth) to see how surgery to remove it affects their breathing and emotional well-being over time. Your child might be eligible if they are already part of a large French research program called MALFPULM.
Hear when a new Bronchopulmonary Dysplasia (BPD) trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.