Genetics of pulmonary hypertension study

This study collects blood samples and medical information from people with pulmonary hypertension (high blood pressure in the lungs) to help researchers better understand the condition and develop new treatments. Your participation involves providing a blood sample and allowing researchers to access your health information.

This study aims to better predict the future risk for people with pulmonary hypertension (high blood pressure in the lungs) by combining different types of health information collected over time. If you join, researchers will track your health data to build a tool that personalizes care and improves outcomes.

This study looks at genes that may contribute to pulmonary arterial hypertension (PAH) in people born with certain heart “shunts” (holes between heart chambers). If you have (or your family has) ASD or VSD and PAH confirmed by a heart pressure test, you may be invited to share genetic and health information to help researchers understand risk and better target future care.

This study collects information from people with rare types of pulmonary hypertension (high blood pressure in the lungs) and from healthy volunteers. It helps researchers better understand these conditions, especially using a special lung-heart test to confirm the diagnosis.

This observational study is looking at people diagnosed with pulmonary hypertension to better understand how it behaves over time. You may help researchers by allowing repeated check-ins for years and sharing symptom and test information.

This study builds a medical and symptom database for people who have pulmonary hypertension or may be at risk, to better understand the condition. If you choose to participate, your basic health information and symptom history may be recorded and used for research.