Registry of hypertrophic cardiomyopathy: regional features, genetics and course
Part of Heart & circulation clinical trials.
This study is a registry that collects information about people with hypertrophic cardiomyopathy (a condition where the heart muscle is thickened) to better understand how it affects different people and to study its genetic causes. By joining, you help researchers learn more about this condition and how it progresses.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You can be of any age.
- You have been diagnosed with hypertrophic cardiomyopathy (HCM) based on specific measurements of your heart's thickness or other heart changes on an echocardiogram or MRI.
- If you have high blood pressure, you need to have certain changes on your heart ultrasound or MRI, or on your electrocardiogram (ECG) (a test that records the heart's electrical activity).
- First-degree relatives (parents, siblings, children) 18 years or older can join if they have a slightly thinner heart wall (≥13mm) or specific ECG changes.
- Children under 18 years can join if their heart wall thickness is much greater than expected for their age, sex, and size, especially if they have a family history of HCM or a positive genetic test.
- You must sign a consent form agreeing to be in the study, including genetic testing.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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