Clin2
NCT07485660Likely a fitNot yet recruiting

Improving care for adults with Fabry's disease

Fabry Disease

Part of Brain & nervous system, Genetic & congenital, Heart & circulation, Hormones & metabolism clinical trials.

This study is looking at how to improve the care and follow-up for people with Fabry's disease, a rare genetic disorder. It aims to create a better care pathway to help patients manage their condition.

Summary written for real people, not researchers, by Clin2.

Phase
N/A
Enrollment
200 people
Ages
18 years and older
Study type
Observational

Who can take part

  • You are an adult (18 years or older).
  • You have a confirmed diagnosis of Fabry's disease.

View the official record on ClinicalTrials.gov

Quick eligibility check

Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.

Similar studies

Other trials that look related to this one.

NCT07560956Enrolling by invitation
Quality of Life in Adults With Untreated Fabry Disease

This study looks at how Fabry disease affects daily life in adults who haven't started treatment yet. Researchers want to understand your experiences and challenges to improve care for people with this rare genetic condition.

Gothenburg
NCT07277361Recruiting
Quality of life study for Fabry disease patients aged 65+

This study looks at the quality of life of people aged 65 and older with Fabry disease. It includes patients who are receiving specific treatment and those who are not, to compare their experiences.

Paris, France
NCT07495410Recruiting
Exercise program for people with Fabry disease

This study tests a structured exercise program designed to improve fitness in people with Fabry disease. It aims to see whether regular exercise is a safe and helpful way to support your health.

Prague
NCT03362164Recruiting
Studying heart involvement in people with Fabry disease

This study looks at how the heart is affected in adults with Fabry disease. It may help doctors better understand heart-related changes in order to guide care.

Würzburg, Bavaria
NCT00455104Recruiting
Fabry disease registry for Canadians and eligible adults

This study is a national registry that collects health and medical information from people with Fabry disease. It helps researchers better understand the condition and plan future care and studies.

Calgary, Alberta
NCT07187440Recruiting
Study of Fabry disease treatment in Chinese children and adults

This study tests an enzyme replacement therapy (agalsidase alfa) for Fabry disease in Chinese children and adults. It's an observational study that follows patients who receive the treatment as part of their regular care.

Hefei, Anhui

Hear when a new Fabry Disease trial opens

We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.