Trying out the Amani program for sickle cell disease
Part of Blood & lymphatic, Genetic & congenital clinical trials.
This study is testing a program called 'Amani' that is designed to help people with sickle cell disease. It aims to see if the program is practical and acceptable for patients. If you qualify, you could help improve care for others with sickle cell disease.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You must be 18 years or older.
- You must have sickle cell disease.
- You need to get your sickle cell care mainly at Massachusetts General Hospital (MGH).
- You should be able to speak and understand English comfortably.
- You should not have severe mental health issues (like psychosis or bipolar disorder) or major memory problems that would make it hard to join.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This trial tests a “biochip” device using samples from people with sickle cell disease. If it works, it may help doctors study sickle cell biology more accurately using patient samples.
This study tests a structured program to help teens with sickle cell disease smoothly transition from pediatric care to adult care, with support for parents or legal guardians. It may help families coordinate care sooner and more confidently during this change.
This study uses text messages to help adults with sickle cell disease learn about the latest medical guidelines and tools to manage their health. The goal is to see if this mobile approach improves how people follow their care plan.
This early-phase study tests whether a “half-matched” donor bone marrow transplant, with special medicines to calm the immune system before transplant, can improve outcomes for people with sickle cell disease. It may help high-risk patients who have frequent complications and don’t have a fully matched donor.
This study helps connect adults with sickle cell disease who haven't seen a specialist in over a year back into care. It tests a program designed to make it easier to get regular medical support and improve your health.
This study tests a stress management and mindfulness program designed to help people with sickle cell disease cope better. It aims to see if these techniques can reduce pain and improve your quality of life.
Hear when a new Sickle Cell Disease trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.