Studying brain tumors in children with Von Hippel-Lindau disease
Part of Brain & nervous system, Genetic & congenital, Heart & circulation clinical trials.
This study looks back at the health records of children with Von Hippel-Lindau disease to understand how the condition progresses and to find factors that predict long-term outcomes. It focuses on hemangioblastomas in the brain and spinal cord, which are non-cancerous tumors.
Summary written for real people, not researchers, by Clin2.
Who can take part
- Your child was diagnosed with Von Hippel-Lindau disease before age 18.
- Your child has at least one hemangioblastoma (a non-cancerous tumor) in the brain or spinal cord.
- Your child has medical records, including imaging scans and genetic test results, available for review.
- Your child has had enough follow-up visits to track how the disease changes over time.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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