Support program for caregivers of people with Rett syndrome
Part of Brain & nervous system, Genetic & congenital clinical trials.
This trial tests an online support program for caregivers of individuals with Rett syndrome. The program involves private social media groups and surveys over 6 weeks, aiming to provide psychosocial support to caregivers.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You must be at least 18 years old and a caregiver for someone with a confirmed diagnosis of Rett syndrome.
- You must be able to read, speak, and understand English well enough to join the program and complete surveys.
- You need access to a device with internet to participate in the online program.
- If you are in the randomized part of the study, the person you care for must be taking a standard medication for Rett syndrome (like Daybue) as part of their regular care.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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