Online support program for caregivers of people with Rett syndrome
Part of Brain & nervous system, Genetic & congenital clinical trials.
This study tests a 6-week online support program for people who care for someone with Rett syndrome. The goal is to help caregivers feel more supported and better able to cope.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are 18 years or older and care for someone with Rett syndrome.
- The person you care for has a confirmed diagnosis of Rett syndrome.
- You can speak, read, and understand English.
- You have access to the internet and a device (like a smartphone or computer) to join a private online group.
- You are willing to take part in a 6-week online support program, complete surveys, and possibly have virtual interviews.
- If chosen for the treatment group, the person you care for is taking standard medication (like Daybue) for Rett syndrome.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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