Tracking health of Chinese children with primary ciliary dyskinesia
Part of Ear, nose & throat, Genetic & congenital, Lungs & breathing clinical trials.
This study tracks the health of children with primary ciliary dyskinesia (a rare condition affecting how tiny hairs in the lungs and sinuses move). By collecting information and samples, researchers hope to learn more about this disease in Chinese children.
Summary written for real people, not researchers, by Clin2.
Who can take part
- Child must be between 0 and 18 years old.
- Must have symptoms or a diagnosis of primary ciliary dyskinesia (PCD).
- Either a diagnosis of Kartagener syndrome (a form of PCD) or at least two positive tests, such as abnormal cilia movement, abnormal cilia structure, low nasal nitric oxide, or a PCD-related gene mutation.
- If only one test is positive but there are typical symptoms, the child may still be eligible as a suspected case.
- Need to provide complete medical records and consent to participate.
- Parents or guardians must understand the study and sign a consent form.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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This study is a registry that collects information from people diagnosed with primary ciliary dyskinesia. It may help researchers better understand the condition over time and improve future care.
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