Living with primary ciliary dyskinesia study

This study (RaDiCo-DCP) follows people who have a confirmed diagnosis of primary ciliary dyskinesia, a condition that can affect how your lungs clear mucus. The trial looks at long-term symptoms over time, which may help improve care planning and understanding of the condition.

This study is a registry that collects information from people diagnosed with primary ciliary dyskinesia. It may help researchers better understand the condition over time and improve future care.

This study follows people with primary ciliary dyskinesia (PCD) and looks at their regular ear, nose, and throat (ENT) checkups over time. Your participation may help doctors better understand how ENT care should be followed in PCD.

This study looks at how the airways in people with primary ciliary dyskinesia (PCD) react to certain triggers. It aims to understand if these airways are more sensitive, which could help improve treatment for breathing problems.

This registry study collects medical information and samples from children who may have or have been diagnosed with primary ciliary dyskinesia (PCD). It helps researchers better describe the condition and its causes in Chinese children.

This study checks whether using “PCD diagnostics” helps clinicians make better care decisions for people being evaluated for PCD. You might be able to join if you’re referred for PCD diagnosis and can complete the study steps.