Study for people with primary ciliary dyskinesia follow-up
Part of Ear, nose & throat, Genetic & congenital, Lungs & breathing clinical trials.
This study (RaDiCo-DCP) follows people who have a confirmed diagnosis of primary ciliary dyskinesia, a condition that can affect how your lungs clear mucus. The trial looks at long-term symptoms over time, which may help improve care planning and understanding of the condition.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have a confirmed diagnosis of primary ciliary dyskinesia (PCD) (for example Kartagener’s syndrome)
- Your diagnosis is supported by specific lung cilia findings and/or a clear genetic mutation in a PCD gene
- You can attend at least one follow-up visit each year
- You do NOT have an unconfirmed (still being figured out) PCD diagnosis
- You should not have another changing health problem that would make it hard to judge PCD symptoms
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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