Learn about DICER1-related tumors through a patient registry
Part of Brain & nervous system, Cancer, Genetic & congenital, Hormones & metabolism, Kidney & urinary, Women’s health & pregnancy clinical trials.
This registry collects information about people with known or suspected DICER1-related conditions, including certain rare chest and other tumor types. It helps doctors and researchers understand these conditions better and may support future studies.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have known or suspected PPB (a specific type of thoracic tumor) or a related tumor
- You have known or suspected sex-cord stromal tumors, such as Sertoli-Leydig cell tumor or gynandroblastoma
- You have known or suspected any other DICER1-related condition (many rare tumor/eye/brain types fit here)
- You have (or your doctors suspect) a harmful DICER1 genetic change, even if you don’t have symptoms yet
- You (or a parent/guardian) can give consent to join the registry; if needed, you can also give assent, and HIPAA consent is included
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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