Quality of life study for people with PSP and their caregivers
Part of Brain & nervous system, Eyes & vision clinical trials.
This study looks at quality of life for people with progressive supranuclear palsy (PSP) and the day-to-day burden on the caregiver. It may help researchers understand what support needs are most important and how caregiving affects wellbeing.
Summary written for real people, not researchers, by Clin2.
Who can take part
- Person with PSP symptoms began at age 40 or older
- Doctors must think it is probable or possible PSP (not another Parkinson-like condition)
- Screening must show no severe memory/thinking problems (test score above the study cutoff)
- No serious behavior or mental health issues that would prevent completing study assessments
- You (the caregiver) must be at least 18, chosen by the patient, and able to join the study
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study looks at how people with certain rare brain conditions (like progressive supranuclear palsy, corticobasal syndrome, or multiple system atrophy) use healthcare services and how their quality of life is affected. It may help doctors better support patients and their carers.
This study tests a remote monitoring system to track symptoms of progressive supranuclear palsy (PSP) and similar movement disorders. It may tell you how your condition changes over time without needing frequent clinic visits.
This study looks at genetic factors in people with PSP, CBS, MSA, or similar brain conditions, and also in their family members. It involves genetic testing to learn more about these diseases and may help find new treatments.
This study looks at how much burden (stress and day-to-day strain) ALS creates for both the patient and the main caregiver. It may help shape better ways to support families facing ALS over time.
This trial tests potential new treatments for progressive supranuclear palsy (PSP), a brain disorder affecting movement, balance, and thinking. It aims to see if these treatments are safe and slow the disease. You may be able to join if you have a specific type of PSP and are in fairly good health.
This trial tests a drug called LM11A-31 to see if it can help people with progressive supranuclear palsy (PSP), a rare brain condition. You may join if you have had symptoms for 5 years or less, can walk with minimal help, and have good thinking abilities.
Hear when a new Progressive Supranuclear Palsy trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.