Clin2
NCT06645626Likely a fitRecruiting

Health service use and quality of life in atypical Parkinson's

Progressive Supranuclear PalsyCortico Basal DegenerationMultiple System Atrophy

Part of Brain & nervous system, Eyes & vision clinical trials.

This study looks at how people with certain rare brain conditions (like progressive supranuclear palsy, corticobasal syndrome, or multiple system atrophy) use healthcare services and how their quality of life is affected. It may help doctors better support patients and their carers.

Summary written for real people, not researchers, by Clin2.

Phase
N/A
Enrollment
198 people
Ages
18 years and older
Study type
Observational

Who can take part

  • You are 18 years or older
  • You have a diagnosis of a brain disease that gets worse over time, such as progressive supranuclear palsy, corticobasal syndrome, or multiple system atrophy (other similar conditions may also count)
  • You are able to make your own decisions about taking part when you start the study
  • You are not limited to having only fixed or unchanging symptoms (your condition should be progressive)

View the official record on ClinicalTrials.gov

Quick eligibility check

Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.

Similar studies

Other trials that look related to this one.

NCT07805967Recruiting
Study of rare parkinsonian conditions

This study follows people with certain rare brain conditions that affect movement and thinking, such as multiple system atrophy, dementia with Lewy bodies, progressive supranuclear palsy, and corticobasal degeneration. It aims to learn more about how these conditions progress over time, which may help improve future care.

Changshu, Jiangsu
NCT07644013Recruiting
Multiple System Atrophy Registry Study in China

This study is collecting information from patients with multiple system atrophy (a rare neurological condition affecting movement and body functions), Parkinson disease, and healthy volunteers to better understand these conditions. By participating, you help doctors learn more about how these diseases develop and progress.

Beijing, Beijing Municipality
NCT03872102Recruiting
Brain imaging study to track Parkinson-related disease changes

This study uses brain scans and clinical check-ins to better diagnose and predict how Parkinson-related conditions may progress over time. It may help researchers find markers that explain why symptoms change, and could improve future care.

Dallas, Texas
NCT06647641Recruiting
Genetics study for PSP, CBS, MSA, and related conditions

This study looks at genetic factors in people with PSP, CBS, MSA, or similar brain conditions, and also in their family members. It involves genetic testing to learn more about these diseases and may help find new treatments.

Boston, Massachusetts
NCT02194816Recruiting
Online survey study for people with Parkinson’s or Parkinsonism

This study looks at how changing certain factors over time relates to symptoms in Parkinson’s disease and related conditions. You may help researchers by completing longer online surveys every 6 months for 5 years.

Kenmore, Washington
NCT04472130Recruiting
Neurodegenerative disease registry for adults

This study collects health information from adults with neurodegenerative diseases to help researchers learn more about these conditions and improve future care.

Hong Kong

Hear when a new Progressive Supranuclear Palsy trial opens

We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.