Health service use and quality of life in atypical Parkinson's
Part of Brain & nervous system, Eyes & vision clinical trials.
This study looks at how people with certain rare brain conditions (like progressive supranuclear palsy, corticobasal syndrome, or multiple system atrophy) use healthcare services and how their quality of life is affected. It may help doctors better support patients and their carers.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are 18 years or older
- You have a diagnosis of a brain disease that gets worse over time, such as progressive supranuclear palsy, corticobasal syndrome, or multiple system atrophy (other similar conditions may also count)
- You are able to make your own decisions about taking part when you start the study
- You are not limited to having only fixed or unchanging symptoms (your condition should be progressive)
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study is collecting information from patients with multiple system atrophy (a rare neurological condition affecting movement and body functions), Parkinson disease, and healthy volunteers to better understand these conditions. By participating, you help doctors learn more about how these diseases develop and progress.
This study tests a remote monitoring system to track symptoms of progressive supranuclear palsy (PSP) and similar movement disorders. It may tell you how your condition changes over time without needing frequent clinic visits.
This study uses brain scans and clinical check-ins to better diagnose and predict how Parkinson-related conditions may progress over time. It may help researchers find markers that explain why symptoms change, and could improve future care.
This study looks at genetic factors in people with PSP, CBS, MSA, or similar brain conditions, and also in their family members. It involves genetic testing to learn more about these diseases and may help find new treatments.
This study looks at how changing certain factors over time relates to symptoms in Parkinson’s disease and related conditions. You may help researchers by completing longer online surveys every 6 months for 5 years.
This study looks at pain and “autonomic” (automatic body) symptoms in people with Parkinson’s disease or a related condition called multiple system atrophy. It aims to understand what helps and to learn more about these symptoms in different types of Parkinson-like illnesses.
Hear when a new Progressive Supranuclear Palsy trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.