Long-term follow-up for people with BAP1 mutations
Part of Cancer clinical trials.
This study follows people with a harmful (deleterious) BAP1 gene change to learn how it affects health over time. It may help researchers better understand mesothelioma risk and the long-term outcomes for families with this genetic mutation.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You must be age 2 or older
- You (or a tested relative, in some cases) have a germline BAP1 gene mutation
- If you have mesothelioma yourself, your BAP1 result can be from research or clinical testing
- If you do not have mesothelioma, you generally need a lab-confirmed BAP1 result done under certified testing (like CLIA)
- You must agree to sign a written informed consent
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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