Genetic risk study for families affected by ALS
Part of Brain & nervous system clinical trials.
This study looks at genetic risk for amyotrophic lateral sclerosis (ALS) in families. It may help researchers understand who carries ALS-related gene changes and how that affects future care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- Be age 18 or older
- No ALS or frontotemporal dementia symptoms at the start of the study
- You must fit a family/genetics risk scenario (already tested with an ALS-related gene, or a close relative is known to carry a mutation, or has ALS with a known mutation, or the study team flags you as high risk)
- Be willing to do genetic testing and choose whether or not to learn the results
- Be able to travel to Columbia University Irving Medical Center every 6–24 months for study check-ins
- For the sample part: you should not have known HIV, hepatitis B, or hepatitis C
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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