Study of gene and disease changes in ALS and frontotemporal dementia
Part of Brain & nervous system, Eyes & vision, Hormones & metabolism, Mental health clinical trials.
This study looks at complex brain and body changes in people with ALS and frontotemporal dementia (FTD), or related disorders. If you have one of these diagnoses—or a known gene mutation that can cause ALS/FTD—you may be able to help researchers learn how the conditions progress.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are 18 years old or older
- You have a neurologist-confirmed diagnosis of an ALS/FTD-related condition, or a related familial gene mutation
- You do not have another major illness that could also explain worsening weakness or thinking problems
- Your health is stable enough that the research team feels it is safe for you to participate
- You can travel to the NIH for study visits
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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