Registry for people with osteogenesis imperfecta
Part of Bones, joints & muscles, Genetic & congenital, Skin clinical trials.
This study is a registry, meaning it collects health information about people with osteogenesis imperfecta (OI) to better understand the condition. It may help researchers learn what care works best and how OI varies from person to person.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You (or your baby) have osteogenesis imperfecta (OI)
- You can join if OI was diagnosed before birth (prenatal or fetal diagnosis)
- You will share health and background information related to OI
- You do not need to have any other unrelated condition to qualify
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study looks at heart structure and function in children and adults with osteogenesis imperfecta (OI), a condition that affects bones. Researchers want to understand how OI may impact the heart.
This study follows people with osteogenesis imperfecta (OI) to better understand how it affects bones and related issues over time. It may help doctors learn which features and genetic changes predict problems, and guide future care.
This study checks how well the inner ear and balance system work in children and young adults with osteogenesis imperfecta (OI). The goal is to better understand hearing and balance issues that can affect daily life.
This trial tests a cell-based treatment to improve bone strength in children with the most severe type of osteogenesis imperfecta (brittle bone disease). If you qualify, it may help slow bone weakening and support growth.
This study looks at whether bisphosphonate treatment affects hearing loss in people with type 1 osteogenesis imperfecta. If you qualify, it may help researchers understand if treatment can protect hearing over time.
This study is a registry that collects information about people with multiple osteochondromas (extra bone/cartilage growths). It may help researchers better understand the condition and improve future care, even if no treatment is given.
Hear when a new Osteogenesis Imperfecta trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.