Register for babies with early-onset epileptic brain disorders
Part of Brain & nervous system clinical trials.
This trial builds a long-term list (register) of babies whose seizures start within the first month of life and who need anti-seizure medicine. The goal is to better understand these conditions and support future research that could lead to better care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- Your baby’s seizures started before they were 1 month old
- A doctor started anti-seizure medicine because of the seizures
- The seizures are not explained by a one-time, fixable cause (like infection or low/high sugar)
- The seizures are not mainly due to an acquired injury (like lack of oxygen after birth or a stroke-related problem)
- There is no known brain malformation that can explain the seizures
- You (as a parent/guardian) agree to take part and fill out parent questionnaires
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study looks at newborns (up to 28 days old) who have seizures to understand them better, using EEG brain-wave testing. If you agree to participate and can follow the study plan, your child’s information may help researchers learn more about neonatal seizures.
This study tests treatments for seizures in newborns who have brain injury from lack of oxygen at birth (HIE). It aims to find the best way to control seizures in the first few days of life.
This study looks at the genetic causes of epilepsy that starts in babies under 1 year old. It aims to learn how a genetic diagnosis might help guide care.
This study looks at what causes certain serious seizures that start early in life, and how to treat them. It may help doctors better match treatments to the seizure cause in newborns and young infants.
This trial tests whether starting a special high-fat diet (ketogenic diet) early can prevent epileptic spasms in babies with genetic epilepsy. It uses a specific formula called KetoVie and is for infants under 9 months old.
This study enrolls newborns (within the first 28 days of life) who have specific brain or nervous system conditions. It tests how these conditions are tracked and studied, which may help improve care and understanding over time.
Hear when a new Epileptic Encephalopathy trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.