Congenital heart disease transplant registry study for adults
Part of Genetic & congenital, Heart & circulation clinical trials.
This study collects and shares anonymous information about adults being considered for a heart transplant because of a congenital (from birth) heart problem or an inherited heart muscle condition. The goal is to better understand these patients and support research that may improve care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You must be an adult (age 18 or older) being considered for a transplant
- Your condition must be either a congenital heart defect or a specific inherited heart muscle problem (hypertrophic, arrhythmogenic right-sided, or non-compaction cardiomyopathy)
- The information must come from your first time being evaluated for transplant listing
- Your data must be shared after removing personal identifiers (anonymous data)
- The hospital or organization must agree to how data is handled and that institutions will work together on research
- You cannot be listed for a second heart transplant (retransplant)
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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