Therapy coaching for parents of children with rare genetic syndromes
Part of Bones, joints & muscles, Brain & nervous system, Cancer, Genetic & congenital, Heart & circulation, Skin clinical trials.
This trial tests an “Acceptance and Commitment Therapy” program for parents or legal guardians who feel moderate parenting stress. It aims to help caregivers cope in healthier ways and may also improve how they manage stress while supporting their child.
Summary written for real people, not researchers, by Clin2.
Who can take part
- Be 18 years or older and able to read and speak English
- Be a child’s parent or legal guardian (caregiver)
- Your child (under 18) has a RASopathy, such as NF1, Noonan, Legius, CFC, or Costello, or another RASopathy
- Your child must live with you at least half of the time
- You must have access to technology (computer/smartphone + internet) or be willing to use an iPod provided by the study
- You need to have moderate parenting stress based on a questionnaire score (Parental Stress Scale)
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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