Kidney artery fibromuscular dysplasia registry for patients
Part of Heart & circulation clinical trials.
This registry collects information from people diagnosed with kidney artery fibromuscular dysplasia (or certain similar, “atypical” cases). It helps doctors better understand patterns of the condition and may guide future research and care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You agree to take part and sign informed consent
- You have a diagnosis of kidney artery fibromuscular dysplasia confirmed by a scan (CT-angiography, MR-angiography, or catheter angiography)
- Your case is either classic “string-of-beads” or focal narrowing OR you have an atypical pattern like a dissection or certain aneurysms
- If you are under 18, your diagnosis must not be due to a known inherited syndrome such as Williams, Alagille, or type 1 neurofibromatosis
- Your study doctor must consider you able and appropriate to join
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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