FSGS and MCD patient registry for kidney disease
Part of Kidney & urinary, Women’s health & pregnancy clinical trials.
This study is a registry that collects medical information from people with nephrotic syndrome caused by FSGS or minimal change disease (MCD). It may help doctors better understand these conditions and improve future care, especially by tracking patients over time.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You can and will sign a written consent form
- You are 17 or younger (child group) or 18+ (adult group)
- You have nephrotic syndrome caused by idiopathic causes (17 or younger) or confirmed FSGS/MCD (adults)
- For adults: your kidney biopsy shows FSGS or MCD, including cases after a kidney transplant where the disease came back
- You should not have had a prior kidney transplant unless there is biopsy-proven disease recurrence, and your doctors don’t believe a different kidney condition explains your disease
- You can plan to follow the visit schedule and are not expected to skip visits
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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This observational study looks at people with FSGS or minimal change disease whose kidney disease came back after a transplant. The goal is to better understand patterns of recurrence and what factors may be linked to it.
This study looks at substances in the blood of people with nephrotic syndrome, a condition that causes protein to leak into the urine. It may help doctors understand the disease better.
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