European registry for rare anemia disorders
Part of Blood & lymphatic, Genetic & congenital, Hormones & metabolism clinical trials.
This study is creating a European registry (database) to collect information about people with rare anemia disorders. By joining, you help researchers better understand these conditions and improve care for yourself and others.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with a rare anemia disorder like sickle cell disease, thalassemia, or pyruvate kinase deficiency.
- You are willing to allow your medical information to be collected for research.
- You are between 0 and 100 years old.
- You are not just a carrier of a rare anemia trait (like having sickle cell trait or thalassemia trait).
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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