Measuring behavior and emotions in Duchenne and Becker muscular dystrophy
Part of Bones, joints & muscles, Brain & nervous system, Genetic & congenital, Mental health clinical trials.
This study looks at how to measure behavioral and emotional challenges in boys with Duchenne or Becker muscular dystrophy, and in boys without the condition. It aims to find better ways to assess these issues, which could help improve care and treatments.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are a boy between 7 and 17 years old.
- You have a genetic diagnosis of Duchenne (DMD) or Becker (BMD) muscular dystrophy, or you do not have any form of muscular dystrophy (control).
- If you have DMD or BMD, your genetic mutation must affect certain dystrophin proteins (Dp427, and possibly Dp140).
- You do not have severe vision or hearing loss, or strong fears or sensitivities to study-related stimuli (like loud noises or tight spaces).
- You are not currently in a clinical trial for a new drug that changes dystrophin.
- You have a parent or guardian who can give consent, and you are able to give your own agreement (assent).
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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