Twins study on ALS and FTD with genetic and environmental focus
Part of Brain & nervous system clinical trials.
This study looks at twins where at least one has ALS (a nerve disease) or FTD (a brain disorder) to understand how genes and environment affect these conditions. It may help if you and your twin both want to join.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You must be 18 years or older
- You and your twin (identical or fraternal) both agree to take part and can give written permission
- At least one of you has been diagnosed with ALS or frontotemporal dementia (FTD) using standard criteria
- You must be willing to do study tasks and give blood or other samples (no spinal tap required)
- You cannot be pregnant or nursing
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study looks at genetic risk for amyotrophic lateral sclerosis (ALS) in families. It may help researchers understand who carries ALS-related gene changes and how that affects future care.
This study aims to match people with ALS to potential treatments based on their genetic profile. It connects you to a network of trials that may be relevant to your specific type of ALS.
This study is for adults who have a strong family history of ALS or FTD (like a parent or sibling with the disease) to help researchers understand how to prevent these conditions. It involves following you for about a year to track your health.
This study looks at complex brain and body changes in people with ALS and frontotemporal dementia (FTD), or related disorders. If you have one of these diagnoses—or a known gene mutation that can cause ALS/FTD—you may be able to help researchers learn how the conditions progress.
This study looks at DNA changes to explain why two identical (monozygotic) twins can have different symptoms. It may help clarify the cause of an unclear condition in one twin so the right diagnosis (and future treatment) can be found.
This study looks at people affected by ALS (a nerve disease) and, in some cases, family members who may be at genetic risk. It may help researchers better understand ALS and related conditions and improve how they’re studied.
Hear when a new FTD trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.