UK registry for Duchenne muscular dystrophy
Part of Bones, joints & muscles, Brain & nervous system, Genetic & congenital clinical trials.
This study creates a national registry for people with Duchenne muscular dystrophy in the UK. It collects routine health data to help research and improve care, without requiring any extra tests or procedures.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You (or your child) have a confirmed diagnosis of Duchenne muscular dystrophy (DMD), either by genetic testing or muscle biopsy.
- You live in the United Kingdom.
- You can join even if you are already in another clinical trial or have had surgery — this study just collects regular health information.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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This study is building a registry of people with Duchenne muscular dystrophy to learn more about how the condition develops over time, which can help improve future care and research. If you join, your health information will be collected during your regular clinic visits.
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This registry collects health information from people with Duchenne or Becker muscular dystrophy using a telemedicine platform. Joining helps doctors better understand the disease and may improve future care.
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