Registry for Duchenne and Becker muscular dystrophy
Part of Bones, joints & muscles, Brain & nervous system, Genetic & congenital clinical trials.
This study collects information from patients with Duchenne or Becker muscular dystrophy to learn more about the conditions and improve care. You will share data through a telemedicine platform, and you need a smartphone or tablet to take part.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have a confirmed genetic diagnosis of Duchenne or Becker muscular dystrophy
- If you are a female carrier, you must have symptoms of the condition
- You are being treated at one of the participating centers
- You can understand the study and sign a consent form (or a parent can do it for you)
- You have a smartphone or tablet to use the telemedicine platform
- You agree to share your data with your doctors and the registry
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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