Quality of life questionnaire for spina bifida patients
Part of Brain & nervous system, Genetic & congenital clinical trials.
This study tests a new questionnaire QUALAS to see how well it measures quality of life in Dutch people with and without spina bifida. If you have spina bifida or are a healthy volunteer, you may help validate this tool.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have spina bifida (patient group) or you don't (control group)
- You are between 8 and 17 years old, or an adult (18+)
- You speak Dutch fluently, or if you are a child, your parent does
- You have not had surgery in the last month
- You do not have any other nerve-related disease besides spina bifida
- You and/or your parent can sign a consent form
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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