Bladder Health and Life Quality in Spina Bifida
Part of Brain & nervous system, Genetic & congenital clinical trials.
This study asks adults and teens with spina bifida about how their bladder care affects their daily life and well-being. Your answers will help doctors better understand what matters most to patients.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have spina bifida (a birth condition affecting the spine and nerves)
- You are at least 13 years old
- You can speak and understand English or Spanish
- You're willing to answer questionnaires about your bladder health and quality of life
- You have not had bladder surgery or a urinary diversion procedure in the last 3 months
- You have not been hospitalized in the last month
- Your method of bladder management (catheterization, medications, etc.) has been stable for at least the last month
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study tests a new questionnaire QUALAS to see how well it measures quality of life in Dutch people with and without spina bifida. If you have spina bifida or are a healthy volunteer, you may help validate this tool.
This trial studies blood vessels in people with spina bifida using safe, non-invasive methods. It aims to better understand how the condition affects the body over time.
This study looks at how bladder and bowel function affect daily life and participation in children with intellectual disabilities compared to typically developing children. It may help families understand how these functions impact their child's quality of life.
This study looks at why some adults with spinal dysraphism develop problems with bladder, bowel, and/or sexual function. It gathers information during a one-day visit to help doctors better understand risk factors.
This trial tests whether biofeedback training (a technique that uses sensors to help your child learn to control their bladder and bowel muscles) can improve bladder and bowel function in children with spina bifida. It might help your child gain more control over these functions.
This study looks at how bladder problems, like frequent urination or leaks, affect teenagers and young adults as they switch from pediatric to adult doctors. The goal is to learn what helps you feel better and manage your health.
Hear when a new Spina Bifida or Spinal Dysraphism trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.