Telehealth in MND research database

This study asks people affected by MND (patients, carers, healthcare pros) to share their experiences in a focus group, interview, or email. The goal is to help improve care and support for everyone.

This study uses remote technology, like apps or wearable devices, to monitor motor skills and development in boys with Duchenne muscular dystrophy (DMD). It aims to find better ways to measure how the disease progresses over time without requiring frequent clinic visits.

This trial builds and studies a national database that collects patient-reported outcomes (answers about symptoms and function) and patient/clinic information for musculoskeletal (muscle and joint) care. It may help improve how these services are delivered by showing what works in real-world primary/community care.

This study tests treatments for motor neurone disease (MND) and assigns people to different treatment arms in an adaptive way. It may help doctors find out which medicine works best and for whom.

This study collects information from people with ALS or other motor neuron diseases to better understand how these conditions vary. By joining a database, you help researchers find patterns that could improve care.

This study tests whether remote assessments can track myotonic dystrophy type 1 (DM1) and looks at genetic factors. It aims to find better ways to monitor the disease from home.