Telehealth in MND research database

This study, called 'MND Together: Phase 1', is about gathering input from people with motor neuron disease (MND), their carers, and professionals to shape future care and research. By sharing your experiences, you can help improve services and support for the MND community.

This study uses remote technology, like apps or wearable devices, to monitor motor skills and development in boys with Duchenne muscular dystrophy (DMD). It aims to find better ways to measure how the disease progresses over time without requiring frequent clinic visits.

This study looks at how your body uses energy and nutrients when you have motor neurone disease (MND). It focuses on people who are starting to see a specialist breathing clinic, to better understand nutrition and metabolism in MND.

This trial builds and studies a national database that collects patient-reported outcomes (answers about symptoms and function) and patient/clinic information for musculoskeletal (muscle and joint) care. It may help improve how these services are delivered by showing what works in real-world primary/community care.

This study tests treatments for motor neurone disease (MND) and assigns people to different treatment arms in an adaptive way. It may help doctors find out which medicine works best and for whom.

This study collects information from people with ALS or other motor neuron diseases to better understand how these conditions vary. By joining a database, you help researchers find patterns that could improve care.