Children's liver disease registry in Canada
Part of Digestive system, Genetic & congenital, Heart & circulation clinical trials.
This study creates a registry to track children with specific genetic liver conditions that cause cholestasis (slow bile flow). Being in the registry helps researchers better understand these diseases and may help future patients.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You must be under 18 years old
- You must have a confirmed diagnosis of Alagille syndrome or a genetic type of progressive familial intrahepatic cholestasis (PFIC)
- You must be treated at a participating children's hospital in Canada
- You or your parent/guardian must sign a consent form to join the study
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study looks at how well Livmarli works for people with Alagille syndrome or a liver disease called PFIC. It uses data from prescriptions to understand the treatment's effects.
This study tracks treatments and outcomes for people with a confirmed genetic form of PFIC, a rare liver disease. It helps doctors learn which treatments work best for each type.
This study looks at how genes affect bile flow problems in the liver. If you have a rare genetic condition like PFIC, researchers want to understand your specific type better by comparing your genes to your symptoms.
This study looks at different genetic liver conditions called PFIC and follows how they progress over time. It also studies whether a procedure called biliary diversion may improve symptoms or long-term outcomes.
This is a registry study collecting information about children and teens with fatty liver disease that isn’t caused by alcohol. It aims to better understand this condition and may help future research and treatments.
This study looks at whether certain family-related genes make people more likely to develop liver or bile duct cancers without a clear cause. If you had surgery or a transplant for one of these cancers and have had unexplained high liver enzymes or itching, this trial may help find genetic clues.
Hear when a new PFIC - Progressive Familial Intrahepatic Cholestasis trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.