Quality of life study for kids and young adults with HHT
Part of Blood & lymphatic, Genetic & congenital, Heart & circulation clinical trials.
This study uses surveys to understand how HHT affects the quality of life of children and young adults. It may help improve care and support for patients and their families.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are between 2 and 25 years old.
- You have a confirmed diagnosis of HHT (Hereditary Hemorrhagic Telangiectasia).
- You receive care at Cincinnati Children's Hospital Medical Center (CCHMC).
- You can complete the survey in English.
- If you are 8 or older, you agree to take the survey yourself.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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