Quality of life in young people with HHT
Part of Blood & lymphatic, Genetic & congenital, Heart & circulation clinical trials.
This study is about understanding how HHT (a condition that causes abnormal blood vessels) affects quality of life in children and young adults. If you join, you (or your caregiver) will fill out a survey about your daily life and symptoms.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You must be between 2 and 25 years old.
- You must have a confirmed diagnosis of HHT (hereditary hemorrhagic telangiectasia).
- You must receive care at Cincinnati Children's Hospital HHT Center (at least one visit with a genetic counselor or the center director).
- You must be able to complete a survey in English, or have a parent/guardian complete it for you if you are under 18.
- If you are 8 to 17 years old, you must agree to take the survey (assent).
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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