HHT patient registry tracking long-term outcomes
Part of Blood & lymphatic, Brain & nervous system, Digestive system, Ear, nose & throat, Genetic & congenital, Heart & circulation, Lungs & breathing clinical trials.
This registry collects health information from people with HHT over time to better understand the disease and improve care. Joining does not involve any experimental treatment, but your data will help researchers learn more about HHT.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You must have been diagnosed with HHT, either by a doctor using the Curacao criteria or through a genetic test.
- You must be able to give permission to join (or have a parent or legal representative do it for you).
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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