Clin2
NCT07101575Likely a fitNot yet recruiting

Heart health check for people with HHT

Hereditary Hemorrhagic Telangiectasia

Part of Blood & lymphatic, Genetic & congenital, Heart & circulation clinical trials.

This study evaluates the heart health of people with hereditary hemorrhagic telangiectasia (HHT), a condition that causes abnormal blood vessels. By participating, you help doctors understand how HHT affects the heart, which may improve future care.

Summary written for real people, not researchers, by Clin2.

Phase
N/A
Enrollment
380 people
Ages
10 years to 80 years
Study type
Observational

Who can take part

  • You must be older than 10 years old.
  • You must have a confirmed diagnosis of HHT (based on clinical signs) or a genetic test showing a mutation in one of the HHT-related genes.
  • You must be willing to sign a consent form (or have a parent or guardian do so).
  • Your heart ultrasound images need to be clear enough to be analyzed.

View the official record on ClinicalTrials.gov

Quick eligibility check

Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.

Similar studies

Other trials that look related to this one.

NCT06259292Recruiting
HHT patient registry tracking long-term outcomes

This registry collects health information from people with HHT over time to better understand the disease and improve care. Joining does not involve any experimental treatment, but your data will help researchers learn more about HHT.

Birmingham, Alabama
NCT07623525Recruiting· Phase 1/Phase 2
DIAG723 study for hereditary hemorrhagic telangiectasia

This study tests a new drug called DIAG723 in adults with hereditary hemorrhagic telangiectasia (HHT), a genetic condition that causes abnormal blood vessels and bleeding. Depending on which part of the study you qualify for, the drug may help reduce nosebleeds, improve anemia, or help with lung blood vessel problems caused by HHT.

Camperdown, New South Wales
NCT07826845Recruiting
Body donation for people with HHT

This study asks people with HHT (a genetic condition that causes abnormal blood vessels) to consider donating their body after death to help medical research. It aims to learn more about HHT by studying donated tissues.

Essen, North Rhine-Westphalia
NCT06261333Enrolling by invitation
Quality of life study for HHT patients

This study looks at how hereditary hemorrhagic telangiectasia (HHT) affects your day-to-day life and well-being. By joining, you'll answer questions to help doctors better understand the impact of the condition.

Essen, North Rhine-Westphalia
NCT04469517Recruiting
Study of low-oxygen factors in hereditary bleeding disorder

This study looks at how “low-oxygen” signals may affect people with hereditary hemorrhagic telangiectasia (HHT), a genetic bleeding disorder. It may help researchers understand what drives symptoms and could guide future treatments.

Essen, North Rhine-Westphalia
NCT07743671Recruiting· Phase 3
Engasertib for frequent nosebleeds from HHT

This trial tests an experimental pill, engasertib, to reduce frequent nosebleeds in adults with a rare blood vessel condition called hereditary hemorrhagic telangiectasia (HHT). Participation may help if you have moderate to severe nosebleeds and need iron or blood transfusions.

Chicago, Illinois

Hear when a new Hereditary Hemorrhagic Telangiectasia trial opens

We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.